CCI is the largest patient support organization for childhood cancer. It is a global, parent-driven non-profit association that represents 181 parent organizations, childhood cancer survivor associations, childhood cancer support groups, and cancer societies, in 90 countries, across 5 continents.

Representatives from European parent- and survivors- organisations as well as professionals from 24 European countries attended the event. In the context of the conference an introduction round on “CCI work & EU projects overview” has been organised on Friday 22nd of April 2016, where Patty Brouwer (CCI) presented the GAPP Project to this wide and receptive audience. After providing a general overview of the GAPP project, she explained the CCI role in the project explaining that: ”These trials will include many oncology patients. For their parents pain is one of the most concerning and frightening aspects of the journey. CCI wants to ensure that children receive the best possible care (pain treatment) wherever they are in the world at the time of diagnosis and beyond”.

She further presented the patient information material for both GABA-1 and GABA-2 trials composed of:

• 3 booklets for 3 age groups aimed to help children to decide in participation
• Video aimed to provide an explanation of trials in general
• Patient diary to be used by children and parents at home to record pain scores

She underlined that the information booklets have been reviewed by children in focus groups in Italy at the children’s hospital of Padova and in The Netherlands at the pain department Rotterdam and at VOKK (Vereniging Ouders, Kinderen en Kanker) patients association.

Here you can see the GAPP presentation entitled “Pain treatment in children. GAbapentin in Paediatric Pain (GAPP)”.

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The meeting was promoted in the framework of the EU-funded project DEEP (DEferiprone Evaluation in Paediatrics) and aimed to foster clinical research in Albania and raise attention on the importance of European Networks for the creation of synergies to spread excellence and attract European funding.

Structured into 2 thematic sessions (Clinical Research in Albania and Networks and Projects in a Global Context), the meeting provided the opportunity to discuss many topics related to the conduct of pediatric clinical trials, such as the barriers that researchers encounter to the timely development of safe and efficacious medicines especially for children; the related need to set up infrastructures for each study in each site; the role of collaborative efforts in medicine and research. In particular, participants stressed the importance of the international cooperation in the activities performed in clinical research as a way to promote interdisciplinary participation through high-impact, mission-driven collaborations with leading health providers, governments and educational institutions.

On this occasion, the GAPP Project was presented by Alketa Hoxha (University Hospital Center “Mother Teresa, Faculty of Technical Medical Sciences, University of Medicine Tirana, Albania), in the “Networks and projects in a global context” session with a presentation entitled “Participating in an international research network: the experience of Mother Teresa University Hospital in the GAPP Project”.

Here you can download the GAPP presentation.

For further information on the scientific events, please download the brochure of the event and the abstracts. Here you can download all the presentations of the Open Meeting.

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The “Nextwork” Forum represents a large-scale event where all project managers and dissemination leaders from European Member States and the neighbouring States can discuss about EU-funded projects by sharing opinions and evaluations with stakeholders and other interested people, thus creating a benchmark of awareness, perception, opinion and action.

The GAPP Project has been presented in the “Project – Best practice presentations” session and a dedicated page on the project was published on the Nextwork Forum official website.

The initiative was an important occasion to showcase the GAPP Project, compare experience at European level, create awareness in different audiences and develop international relations with the various protagonists of EU-funded projects (academic and educational institutions, universities, companies, public authorities, associations and research centres).

For further information on all the scientific events, please refer to the brochure of the event and visit the page where all EU projects are presented.

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To this wide and receptive audience Patty Brouwer presented the GAPP Project, which final goal is to demonstrate the efficacy and safety of gabapentin both as monotherapy and as add-on therapy for the treatment of chronic pain, which affects children with various illnesses, including cancer.

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