The theme of Rare Disease Day 2016 “Patient Voice” – paying tribute to the millions of people whose lives are affected by a rare disease and also to their families, friends and loved ones, who stand by them and support them every step of the way – recognizes the crucial role that patients play in voicing their needs and in instigating change that improves their lives and the lives of their families and carers.

In particular, the Rare Disease Day 2016 slogan “Join us in making the voice of rare diseases heard” appeals to a wider audience, those that are not living with or directly affected by a rare disease, to join the rare disease community in making known the impact of rare diseases.

People living with a rare disease and their families are often isolated. To this aim, the wider community can help to bring them out of this isolation and Rare Disease Day will foster this process amplifying the voice of rare disease patients so that it is heard all over the world.

The GAPP Project is pleased to be part of this world wide initiative and joins this event by becoming a friend and a supporter of the Rare Disease Day.

For more information, please visit the official Rare Disease Day website.

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