The 7th Childhood Cancer International (CCI) Europe Regional Conference was held in Belgrade (Serbia) from 22 – 24 April 2016 and was hosted by the Serbian Childhood Cancer Network.
CCI is the largest patient support organization for childhood cancer. It is a global, parent-driven non-profit association that represents 181 parent organizations, childhood cancer survivor associations, childhood cancer support groups, and cancer societies, in 90 countries, across 5 continents.
Representatives from European parent- and survivors- organisations as well as professionals from 24 European countries attended the event. In the context of the conference an introduction round on “CCI work & EU projects overview” has been organised on Friday 22nd of April 2016, where Patty Brouwer (CCI) presented the GAPP Project to this wide and receptive audience. After providing a general overview of the GAPP project, she explained the CCI role in the project explaining that: ”These trials will include many oncology patients. For their parents pain is one of the most concerning and frightening aspects of the journey. CCI wants to ensure that children receive the best possible care (pain treatment) wherever they are in the world at the time of diagnosis and beyond”.
She further presented the patient information material for both GABA-1 and GABA-2 trials composed of:
She underlined that the information booklets have been reviewed by children in focus groups in Italy at the children’s hospital of Padova and in The Netherlands at the pain department Rotterdam and at VOKK (Vereniging Ouders, Kinderen en Kanker) patients association.
Here you can see the GAPP presentation entitled “Pain treatment in children. GAbapentin in Paediatric Pain (GAPP)”.
